白白手拉手-手拉手白癜风论坛

 找回密码
 注册新成员
搜索

楼主: 熊宝宝

[白白闲谈] 发现一个英国人的blog,有白癜风40多年现在接近痊愈!(18日最新更新)

  [复制链接]

14

主题

453

帖子

3659

积分

初中三年级

发表于 2014-9-25 19:46:12 | 显示全部楼层
楼主,过去一个多月,感觉怎么样啦
如果您认可本论坛,欢迎告诉身边的病友,让更多的朋友来到这里,你+我=手拉手!

10

主题

192

帖子

2807

积分

初中二年级

 楼主| 发表于 2014-9-26 01:28:47 | 显示全部楼层
单翼天使 发表于 2014-9-25 19:46
楼主,过去一个多月,感觉怎么样啦

因为我每用药三个月就停两个月,所以那药没吃几天我就和其他一起停了,要到12月才开始再吃。最近在单纯照光而已h

46

主题

233

帖子

2770

积分

初中二年级

发表于 2014-9-26 07:50:00 来自手机 | 显示全部楼层
不吃含麸质的东西试试

6

主题

95

帖子

848

积分

小学六年级

发表于 2014-10-4 19:12:59 | 显示全部楼层
haha

18

主题

121

帖子

2860

积分

初中二年级

发表于 2014-10-4 20:34:27 | 显示全部楼层
熊宝宝 发表于 2014-7-17 16:07
已更新!希望天涯哥讲讲看法!!

好问题,狂点32个赞
不小心点到反对的按钮了,而且还无法取消,bug!  bug!

11

主题

196

帖子

1956

积分

初中一年级

发表于 2014-10-6 19:11:54 | 显示全部楼层
转两篇卡洛琳大婶的文章。

1、什么是白癜风


    以下关于白癜风(有时也被称为癜)的定义和描述是来自白癜风协会网站,这是我找到的最准确,最简洁的定义和描述。

  “白癜风是一个相当常见的皮肤病,每一百个至少有一人患有此病。在国家在世界各地,包括英国,任何肤色或人种,不论男女,都有病例。

    白癜风导致皮肤或者毛发出现白色的斑块。这是因为给予皮肤颜色的黑素细胞已损坏或破坏。该疾病可以扩散,迅速或缓慢,最坏的可能是覆盖整个身体表面。
    白癜风的最常见的形式为对称的形式,白癜风影响身体的两侧。在某些情况下,仅有单侧身体的受影响(节段性白癜风),这种类型的具有有限的进展,并且更难以治疗。
    白癜风可开始于任何年龄,约50%的患者出现在20岁以前。

    白癜风不会传染的。即使不会发生身体症状,但如果他们受到阳光直射白斑可能会晒伤。病情可能会导致严重的心理困扰,尤其是当面部,颈部,双手及阴部受到影响。虽然这种疾病使黑色或晒黑的皮肤更明显,困扰的程度并不一定与皮肤颜色或与疾病的严重程度有必然的联系。然而,皮肤黝黑的某些族群的白癜风患者可能会觉得更加痛苦。

    白癜风的发展是不发预测的。有些人可能发病已经多年也不会注意到自己的病情,而有些他人却发展相当迅速。尽管白癜风是不能完全治愈的罕见的疾病,在某些情况下,特别是在儿童,白斑可自愈。
------------------

What Is vitiligo?

The following definition and description of vitiligo (or leucoderma, as it is sometimes called) is taken from the Vitiligo Society website and is the most accurate and concise I have found.

"Vitiligo is quite a common skin disease which affects at least one person in every hundred in countries throughout the world including the UK. Anyone, male or female, irrespective of skin colour or ethnic origin can develop the condition.

Vitiligo causes the skin, and sometimes the hair, to turn white in patches. This is because melanocytes, the cells which give the skin its colour, have either been damaged or destroyed. The disease can spread, rapidly or slowly, to cover the entire body surface (universal vitiligo) but this is not inevitable. The most common form of vitiligo appears in symmetrical form (generalised vitiligo) affecting both sides of the body. In some cases only one half of the body is affected (segmental vitiligo) and this type has limited progression and is more difficult to treat. Vitiligo can begin at any age, though about fifty percent of people develop it before the age of twenty.

You cannot catch vitiligo. It is not infectious. Although there are no physical symptoms apart from sunburn in the white patches if they are not protected from the sun, it can cause severe psychological distress, especially when the face, neck, hands and genitals are affected. Although the disease is more noticeable on dark or tanned skin the degree of distress is not necessarily linked to skin colour or to the extent of the disease. However, people with dark skin from certain ethnic groups who develop vitiligo may feel particularly stigmatised and fear a loss of identity should the disease become widespread.

The course of vitiligo is unpredictable. Some people may not notice a change in their condition for many years, while for others it can spread quite rapidly. In some cases the white patches can spontaneously repigment, particularly in children, though it is rare for the disease to resolve completely without treatment."

11

主题

196

帖子

1956

积分

初中一年级

发表于 2014-10-6 19:14:31 | 显示全部楼层
2.是什么原因导致白癜风?
    首先,我要强调,我没有经过专业的医疗培训,所以请不要仅基于本网站的资料就您的健康作出重要的决定。如有疑问,请参考引用的信息或询问你的医生。我有50年的白癜风病史的生活经验及广泛的有关白癜风的资料的阅读,通过采取安全和自然的方法我的癜白风基本治愈,基于以上理由,因此我非常谨慎的确保本网站的所有信息是准确的。我希望下面的信息对你是有用的。
    科学文献对于白癜风莫衷一是。许多研究者相信,是一种自身免疫性维它。一些观点认为白癜风患者皮肤中的过氧化氢水平较高,还有观点认为是遗传倾向或环境影响,还有人则专注于(黑色素瘤的抑制活性蛋白)的作用。所有观点的唯一共识似乎表明,病情的原因和过程尚不清楚而无法治愈。由于缺乏一致意见,我个人的看法是,白癜风可能是多重因素造成的。

  我下面列出了发生在现有的科学文献中的可能原因及相关情况。点击了解更多信息任何项目:


•消化问题

•低胃酸
•炎症性肠病
•普尔胰腺功能
•可怜的肾上腺皮质功能
•肝功能不好
•压力
•恶性贫血
•甲状腺问题
•狼疮
•营养缺乏
•割伤等创伤
•酸碱度失衡
•环境因素
•自体免疫疾病
•遗传倾向


这不是一个详尽的清单 - 我会继续增加,欢迎再次访问!

--------------------------
What Causes Vitiligo?
Before going any further, let me stress that I have absolutely no medical training, so please don't make any important decisi** regarding your health based on the information on this site alone.  If in doubt, please cross reference the information and/or check with your doctor.  However, I do have 50 years experience of living with vitiligo, observing its development, listening to what my own body is telling me and reading up extensively on the whole subject.  I have also almost fully recovered from my vitiligo by taking a safe and natural approach to my treatment.  And I do take great care to ensure that all the information on this site is accurate.  So I hope that you will find the following information useful.

If you have read up on vitiligo, as I have over the years, you will know that the scientific literature presents a confusing picture as to the possible causes of the condition.  Various theories exist as to exactly what triggers the **et and development of vitiligo in some individuals as opposed to others. Many researchers believe there is an autoimmune dimension to it.  Others point to raised levels of hydrogen peroxide in the skin of vitiligo patients, others to hereditary predisposition or environmental influences. Others are focusing their research on the role of MIA (melanoma inhibitory activity protein).  The only real c**ensus of opinion seems to be that the cause and process of the condition is not yet understood and that no cure has therefore been developed.  Given the lack of agreement, my own view is that vitiligo probably has not one cause but many.

I have listed below the possible causes and associated conditi** that occur in the available scientific literature. Please click on any item for more information:


•Digestive problems

•Low Stomach Acid
•Inflammatory Bowel Disease
&#8226oor pancreatic function
&#8226oor adrenal function
&#8226oor liver function
•Stress
&#8226ernicious anaemia
•Thyroid problems
•Lupus
•Nutritional deficiencies
•Cuts and other traumas
•pH imbalance
•Environmental factors
•Autoimmune conditi**
•Genetic predisposition


This is not an exhaustive list - I will continue adding to it, so please do visit again!

4

主题

92

帖子

1025

积分

初中一年级

发表于 2014-10-7 09:00:11 | 显示全部楼层
楼主,方便不方便把你吃的三种药,每种药拍一下照片发出来,最好是正面的照片,近期我亲戚要去德国,我打算购买下。

10

主题

192

帖子

2807

积分

初中二年级

 楼主| 发表于 2014-10-7 23:44:48 | 显示全部楼层
淡水海 发表于 2014-10-7 09:00
楼主,方便不方便把你吃的三种药,每种药拍一下照片发出来,最好是正面的照片,近期我亲戚要去德国,我打算 ...

主页的链接点进去就有图喔!

0

主题

1

帖子

96

积分

幼儿园

发表于 2014-10-13 08:26:42 | 显示全部楼层
我也是肠胃不好!那应该先要治好胃病

10

主题

276

帖子

2857

积分

初中二年级

发表于 2014-10-13 11:34:25 | 显示全部楼层
不快乐 发表于 2014-7-18 21:14
哎!那咋整,孩子想提高免疫力要多喝牛奶,又是过敏体质,不喝奶用什么提高抵抗力呢?

多运动   正常饮食就可以了  农村的孩子不也没牛奶么  身体也很强壮啊

4

主题

92

帖子

1025

积分

初中一年级

发表于 2014-10-25 22:09:18 | 显示全部楼层
熊宝宝 发表于 2014-10-7 23:44
主页的链接点进去就有图喔!

你好,你主页的链接我打开的非常慢,而且有时候打不开,方便的话,你拍几张放上来好吧,就是你说的主要的三种药!致谢!

0

主题

117

帖子

1951

积分

初中一年级

发表于 2014-10-27 10:53:30 | 显示全部楼层
我想白白和肠胃是有关系,也想买点调理肠胃的,问一下国内能买到吗,你们吃的效果咋样?  

1

主题

170

帖子

1516

积分

初中一年级

发表于 2014-10-27 11:23:55 | 显示全部楼层
我们的BB朋友学识渊博

4

主题

92

帖子

1025

积分

初中一年级

发表于 2014-11-2 17:54:59 | 显示全部楼层
你好,这个药有好多种,应该买哪一种呢?我插几个,请楼主帮看看
2.jpg
1.jpg
3.jpg
4.jpg
您需要登录后才可以回帖 登录 | 注册新成员

本版积分规则

声明:本站是白癜风患者交流平台,旨在为广大白癜风患者创造良好的交流环境,欢迎更多白癜风患者朋友们加入,本站不对任何网友评论负责!

本站所有信息仅供参考,未经许可严禁拷贝转载,否则我们将追究相关法律责任!

拒绝任何人以任何形式在本论坛发表与中华人民共和国法律相抵触的言论!

白白手拉手法律顾问:河北高俊霞律师事务所 潘双喜律师

信息产业部备案号:苏ICP备20000142号-3

管理员QQ:1013342662 ;E-mail : vbbsls@126.com !

Archiver|手机版|小黑屋|白白手拉手

GMT+8, 2025-4-20 22:48

快速回复 返回顶部 返回列表