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美国白癫风基金会网站(有译文)

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小学一年级

发表于 2006-8-4 02:26:21 | 显示全部楼层 |阅读模式

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<p><a href="http://www.vitiligosupport.org/">http://www.vitiligosupport.org/</a></p><p><u><font color="#800080">美国白癫风基金会的网站,希望英语水平高的人把上面的最新消息及时发给大家,我是肯定会尽自己所能了,希望兄弟姐妹们共同努力,战胜BB!!! </font></u></p><p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;<font size="6">&nbsp;<font color="#00ff00">表扬信</font></font></p><p><font size="6">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;</font><font size="3"><font color="#44bb44">在此真诚感谢</font><font color="#ee113d">RANKS</font>、<strong><font face="Verdana" color="#61b713"><font color="#0000ff">lucian118</font>、<font color="#0000ff">万家灯火</font>等许多朋友为大家无偿付出的辛苦和智慧!相信在你们的努力下,大家会得到更多关于BB科学的建议和科学的治疗方法。希望各位再接再厉,共同向病魔宣战,坚定不移的和BB做斗争,争取早日康复。同时真切的希望社会能对我们多一点关注,起码少一点误解,多一点宽容。什么时候能够和美国一样有我们自己的基金会,有我们自己的组织和家园。到那个时候,痛苦的人会更少,更多的是支持和鼓励!再次感谢你们,好人终有好报!!!特此表扬!</font></strong></font></p><p><strong><font face="Verdana" color="#61b713" size="3">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;楼主:门门</font></strong></p><p><strong><font face="Verdana" color="#61b713" size="3">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; 2006-8-21&nbsp;&nbsp; 1:00</font></strong></p>
[此贴子已经被万家灯火于2006-9-7 20:58:07编辑过]
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小学四年级

发表于 2006-8-4 18:29:32 | 显示全部楼层
谢谢,我注册了一个账号,有信息常联系呀

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大学二年级

发表于 2006-8-4 21:08:57 | 显示全部楼层
<p>恩,是个好东东,希望有懂英语的翻译一下。帮助我们共同面对病魔。</p>

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小学六年级

发表于 2006-8-7 22:12:13 | 显示全部楼层
<p><strong>MISSION STATEMENT</strong></p><p>Vitiligo Support International is a global community organization committed to supporting those affected by vitiligo, raising awareness, promoting research, and discussing effective treatments until a cure is found.</p><p>(这个组织的)目标陈述</p><p>本组织(Vitiligo Support International) 是一个全球交流组织, 致力于为bb患者提供支持, 引起社会关注, 推进研究, 以及讨论有效的疗法, 直到人们找到一个能够治愈的疗法.</p><p></p><p>其它有价值的部分内容, 以后慢慢翻给大家.</p><p>水平有限, 我尽量保证基本意思是对的.</p>

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小学六年级

发表于 2006-8-7 22:27:16 | 显示全部楼层
我正在申请一个用户, 这样才能访问它的有关页面内容, 请大家等等/:)

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小学六年级

发表于 2006-8-7 22:41:03 | 显示全部楼层
<p><span class="forumsdiscussionspagereplybody">一个朋友描述她丈夫怎么跟疾病斗争以及效果</span></p><p><span class="forumsdiscussionspagereplybody">先把原文存在这儿, 改天来翻译</span></p><p><span class="forumsdiscussionspagereplybody">I hope this helps you- My husband has also recntly developed vit , and this is what we are doing - it seems to be working so far - <br/>......</span><span class="forumsdiscussionspagereplybody"></span></p>
[此贴子已经被作者于2006-8-11 20:39:17编辑过]

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小学六年级

发表于 2006-8-10 23:25:32 | 显示全部楼层
<span class="forumsdiscussionspagereplybody">I hope this helps you- My husband has also recntly developed vit , and this is what we are doing - it seems to be working so far - <br/>希望能够对你们有所帮助-我丈夫最近患上bb, 下面是我们的对策, 现在看起来这些对策是有作用的.<br/>My husband started Novitil in April this year It took about three weeks to show the first spots of colour . then in the second month the spots were coming faster , its been three months now and the smallest spots have filled in completely . and the bigger ones have quite a few freckels in them. <br/>我丈夫今年4月开始用一种药Novitil,3周后出现色素点, 2个月后斑点加速出现, 现在已经3个月了, 小片bb已经完全填满色素点, 大片的上面也有不少色素点.<br/>We bought the novitil online . We live in mauritius so there is plenty of sunlight which is a blessing but i believe the narrow band UV light is surpossed to work just as well. He has been doing it regularly once in the day for 30min usually 3 times a week very intense sunning at 11:30 in the morning and 4 times a week at about 3:30 p.m . .&nbsp; <br/>我们是在线购买的Novitil. 我们住在非洲的毛里求斯, 这里阳光充沛, 这很不错, 我认为窄带UV光也有好处. 他现在每周3次每次30分钟在11:30, 每周4次在下午3:00晒. </span>

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大学二年级

发表于 2006-8-11 08:07:04 | 显示全部楼层
非洲的毛里求斯!!!好嘛,BB到了外国啦。中国人也能与外国人接触了吗?rank5

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小学六年级

发表于 2006-8-11 20:25:18 | 显示全部楼层
<p>He has also started using elidel cream ( BEEN A MONTH )once a day in the morning after a bath ( it seems to work better if u use the cream and even novitil after u shower or wash the area well with warm water as it opens up pores and allows better absorption into the skin)and washes it off after about 6-8 hrs before putting the novitil and sunning. <br/>同时他使用elidel霜, 一个月前开始用. 每天早晨洗澡后涂, 6-8小时后洗去, 再涂Novitil和晒太阳.(看起来洗澡后或温水清洗患处后涂药效果较好, 可能是毛孔张开, 有利吸收)<br/>When we started the sunning it was with five minutes at a time increasing it to 30 mins by the 5th day . The spots turn a pink to deep pink after the sunning . You must leave the novitil on for two hours after the sunning . This really shows better results , the next day the freckels seem darker and new ones appear . <br/>我们开始的时候每次日晒5分钟, 第五天增加到每次30分. bb从粉色变成更深的粉色. 日晒后2小时内不要把Novitil去掉. 这钟做法看起来很好, 第二天色素岛会变深, 并有新色素斑出现.<br/>I must also stress that we are having <br/>green tea everyday <br/>强调一下, 我们每天饮用绿茶<br/>with a vitamin B complex and <br/>还有一种复方维B<br/>two teaspoons of honey+ nigella satival seeds also called black cumin or Kalonji in India , pakistan and arabia or black seeds, have only 5-7 seeds a day not more . They are small the excat size and shape of sesame seeds but jet black and hard . <br/>以及2汤匙蜂蜜, 还有一种叫什么黑色孜然的东西, 跟芝麻差不多外观, 但更硬.<br/>2 tsp of ghee that is clarified butter you can add this to your food , fry yur eggs in it or something it tastes great in food do add it to the food its quite hard to just drink it . <br/>2汤匙酥油(也可加到食物中服用), 还是加到食物中吧, 不然太难喝下了<br/>+ 30 mins of cardio excersise 5 times a week . If u do decide to excercise , excercise in a way that ur body does not get more stressed , that is low intesity workout dont over excert yourself . <br/>每周5次每次30分打牌. 真的想锻炼的话, 不要让身体承受压力, 打牌是低强度的运动.<br/>Avoid all prepacked meals any presevatives , or hydrogenated oils or addititives , food colouring anything with artificial colour or flavouring . We also have fresh juices 3 times a week . Carrot and apple mix.<br/>避免食用快餐食品, 油炸食品及添加剂, 人工色素, 人工调味料. 我们每周3次胡萝卜苹果汤.<br/>Get atleast 8 hrs of sleep and Eat a full breakfast even if u do a light lunch and dinner do not skip breakfast. Also eat as much fruit and veg as possible avoid brinjal (egg plant) gauvava and lady fingers or<br/>( ocra) no tamrind and not too much lemo or lime in your food also avoid turmiric altogether .<br/>每天至少睡8小时, 早餐要吃. 多吃水果蔬菜, 别吃蛋黄.<br/>He eats meat and dairy but no to very little cheese ( he may have had it say 4 times in 3 months on pizza!!)but he has ghee i.e. clarrified butter everyday. <br/>He also has fruit yogart about 3 times a week in his musilli . <br/>他吃肉和奶, 但不吃奶酪. 每天食用酥油(精炼黄油). 每周练3次瑜伽.<br/>But i must tell you that he feels he should not give up foods that are difficult to avoid in your everyday life and more importantly that he enjoys eating , coz unless otherwise advised by your doctor if u give up milk and milk products entirely then over a prolonged period of time your body will have an intense adverse reaction to these foods coz you have avoided it so strongly so unless u are sure u never want to eat something dont give it up entirely just lessen the frequency to a minimum. <br/>还要强调, 不要随便忌食一种日常食物, 那样你的身体会产生说不清的反应, 如果不喜欢吃的话少吃就是了, 只要医生不叫忌食就不要忌食.<br/>THIS IS JUST SOMETHING THAT WORKS FOR HIM THERE IS NO MEDICAL EVIDENCE TO SUPPORT THIS THOUGHT SO PLEASE FOLLOW A DIET THAT YOU ARE COMFORTABLE WITH AND SUITS YOU. <br/>这就是对他起效的东西:没有医学证据说明这一点--你得有一个合适自己的饮食体系.</p><p><br/>He is avoiding sea 他忌食了海产品.<br/>He does not eat white bread , but whole wheat everyday for breakfast . He eats a lot of rasins everyday about 2 tbsp - 4 tbsp and about 3-4 dates a day too. He has been following this diet for the past 3 months . Before this his vit was spreading very rapidly . But now there are no new spots and the old ones we are using novitil on are clearing up (slowly) .<br/>不吃白面包, 但每天早饭吃全麦面包. 每天吃些葡萄干. 已经这样饮食3个月了. 此前他bb发展迅速, 但饮食注意之后不再发展, 用药的地方开始好转(当然, 速度慢).<br/>So we are hopeful. <br/>所以我们是有希望的.<br/>lease let me tell you that u must get alot of restful sleep <br/>必须有充足有效的睡眠.<br/>eat well and excercise keep calm and dont get stressed physically or emotionally as far as u can help . <br/>吃好锻炼好, 心态平和, 不要有器械的或心理的压力.<br/>Coz as far as i can say for my husband it started after he had to have radio therapy, 24 sessions of it and then a tiny spot started and stayed that way for about 2 years , these two years he really took it easy ate well and exceised and basically relaxed , but then at around the end of last year we had a very hectic time he was working a lot not getting enough sleep and food was also not as healthy as it is now and suddenly the vit really flared up , everyday it was getting bigger and spreading . We changed our lifestyle drastically since and it seems to have helped and got it in control. <br/>我丈夫就是在放疗...高强度工作...睡眠不足...后发病的. 我们改变了生活方式生活节奏才控制住了病情.<br/><br/><br/><br/><br/>We are of indian origin , though he is very fair skinned he does not burn easily so please take it easy with your sunning regime until u can work out your own system so sunning without getting burnt , your skin should not blister or burn when u apply any cream to the areas. <br/>我们是印第安后裔, 他皮肤很白净, 日晒的时候也没特别容易晒伤. 所以大家可以放心尝试日晒, 直到找到自己的合适方式. 如果皮肤上涂有霜剂, 一般不会起泡或晒伤.<br/>The area affected by the Vit for my husband is on his adams apple on the neck and two big ones on his collar bone . <br/>我丈夫的bb在脖子上和锁骨上.<br/>I am very hopeful for my husband and hope for the best for everyone on this site , if there is anymore information that i can help u with i will.<br/>我对我丈夫和这个网页上所有人充满希望, 很愿意帮助大家.<br/>I dont have a digital camera yet but will have one by next week . I will post our progress here as soon as possible.<br/>我没有DC, 下周会搞到一个, 我会把过程拍下来.<br/>I hope all this information my help you'll .<br/>希望上面信息帮助大家.<br/></p>

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小学六年级

发表于 2006-8-11 20:28:30 | 显示全部楼层
<p>友情提醒,</p><p>外文资料仅供参考, 不代表人家的做法就是对的</p><p>比如上面这个文章, 她提到的每天吃葡萄干, 我个人就不敢苟同, 但我翻译时没有隐瞒</p><p>以后打算精简了再翻译, 不然连你好再见都译太多了</p>[em07]

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大学二年级

发表于 2006-8-11 21:01:48 | 显示全部楼层
<p>印第安后裔,感觉被他这么一翻译真的感觉外国人离我们很近了。</p><p>大家回帖支持他一下吧。不管怎样人家都是在义务帮我们。</p>

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小学六年级

发表于 2006-8-12 12:39:08 | 显示全部楼层
<p>谢谢版主支持</p><p>我不是在"义务帮助" "你们",</p><p>我是在帮助 "我们",</p><p>呵呵</p><p>咱们bbs也好, 群也好, 目的就是交流</p><p>只要我们动手, 我们可以为自己也为别人做点事情的, 我们不能坐以待毙, 对么, 呵呵</p>

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初中一年级

发表于 2006-8-12 13:19:32 | 显示全部楼层
<p>感谢  楼主啊~~</p>
我在天堂里独舞, 却看到你眼里满是温柔, 为了得到你的爱, 我抛弃了天堂。 幸福,就是死在自己选择的路上——

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小学六年级

发表于 2006-8-12 15:50:12 | 显示全部楼层
<p>刚才看了外文网页上好多帖, 感觉他们讨论的意思跟我们差不多</p><p>就是大家都知道没有特效药, 都在尝试不同的方法, 有的方法也有黑色素点出现</p><p>也遇到不少没有效果的药</p><p>有几个印象很深的药和疗法, 下次翻译帖过来.</p>

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小学六年级

发表于 2006-8-13 13:40:53 | 显示全部楼层
<table height="100%" cellspacing="2" cellpadding="0" width="98%" align="center" border="0"><tbody><tr><td class="forumsdiscussionspagereply" valign="top" align="left" colspan="2" height="1%"><span class="forumsdiscussionspagereplysubject">No new spots for one year!</span></td></tr><tr><td class="forumsdiscussionspagereplydiv" valign="top" align="left" colspan="2" height="1%"><img height="1" alt="" src="http://www.vitiligosupport.org/forums/images/shim.gif" width="1" border="0"/></td></tr><tr><td class="forumsdiscussionspagereply" valign="middle" align="left" height="1%"><table cellspacing="0" cellpadding="0" width="100%" border="0"><tbody><tr><td class="forumsdiscussionspagereply" valign="middle" align="left" width="90%" height="1%"><span class="forumsdiscussionspagereplydate">Friday August 11, 2006 8:32 PM</span><br/>一年没有新的bb斑点了</td><td class="forumsdiscussionspagereply" valign="middle" nowrap="nowrap" align="right" width="10%" height="1%"><a href="http://www.vitiligosupport.org/forums/discussions.cfm?process=postreply&amp;forumid=1&amp;topicid=147711&amp;messageid=147711"></a></td></tr></tbody></table><p>(主要与bb有关内容)儿子11岁时即2年前, 长晕痣, 开始在背部, 后长到脸, 头皮, 胸口, 背部. 看起来与进入青春期有关. <font color="#1111ee">看医生后服用维他命药物及有关补充剂. 常在日光下玩耍.</font>
                                        </p><p>现在一年多了, 没有新bb生出, 脸上已完全康复, 其它部位康复中. </p><p>我有时候很担心他的生活, 但他表现得很出色</p><p>.....</p></td></tr><tr><td class="forumsdiscussionspagereplydiv" valign="top" align="left" colspan="2" height="1%"><img height="1" alt="" src="http://www.vitiligosupport.org/forums/images/shim.gif" width="1" border="0"/></td></tr><tr><td class="forumsdiscussionspagereply" valign="top" align="left" colspan="2" height="1%"><img height="8" alt="" src="http://www.vitiligosupport.org/forums/images/shim.gif" width="1" border="0"/></td></tr><tr><td class="forumsdiscussionspagereply" valign="top" align="left" colspan="2" height="100%"><p><span class="forumsdiscussionspagereplybody">Hello everyone! I want to update you on my son's progress. He began developing halo nevi (vit around moles) over two years ago at age 11. It started with a few spots on his lower back. Within one year, he got new spots on is face, scalp, chest,and more on his back. It seemed to have a direct correlation with him starting to go through puberty. We went to two derms and then finally got an appt. with Dr. Grimes. He began taking her vitamin regimen, along with omega-3 supplements twice a day. He also used protopic twice a day and gets a lot of son from playing outside. Well, it has been over a year and no new spots have developed. The spots on his face are completely gone. The chest and back are slowly repigmenting. The scalp has been the most difficult and I have to cut out the white hairs so they are not noticeable. It has been a difficult thing to deal with (more for me than him). I was SO worried when he began to get new spots and envisioned his life being ruined. I have posted before to let everyone know his life is the same as it always was - GOOD! He continues to have many friends, excels in sports and academics. I strongly believe in the "one day at a time" philosophy which has helped me to stay focused on each day and not worry too much about the future. Just to brag a little, he played in a summer basketball league with about 40 kids and was ranked the #2 player for the all-star team. Mandy</span></p></td></tr></tbody></table>
[此贴子已经被作者于2006-8-13 14:51:48编辑过]
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